Don’t Just Stand There, Do Something!!!

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Howdy, I’ve always wanted to say that!!!  Anyway, one of my biggest battle’s with my Parky, is in the brain.  I exercise my mind everyday, from blogging to books, and word games that are vocabulary based.  Even when the tremors, rigidity steps in, I try to press on.

My frustration set in when my mind is affected.  Trying to speak properly, or just trying to recall what I was talking about.  One day, a few months back, I was walking to my bedroom, and just froze.  I just couldn’t move, I was trapped inside my mind and my body was useless. It has happened a few times, and I can’t stop it.  That’s kinda scary, but I know I won’t give up.  I hate for my family to see me like that, but they always support me.

I’m 41 and battling my Parky daily, but refuse to let it rule my soul. Do I have fears of the future? You bet, but I’m blessed because my faith in God, family, and friends keep me focused on the great life I have.  Well, I’m going to eat some vittles off the grill!!!  Vittles? Another word I’ve always wanted to say!!!

A Little Birdy Told Me

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This post will be short, or not, but I hope extremely helpful.  This has to do with medication relief, but not when you take it relief, but if you have to purchase it, relief.

As many of you know, or all of you may know, medications are so expensive these days.  Whether it be prescribed, or otc,  depending on your need.  It really seems to escalate when you have a disease that requires meds daily, like for me, Parky.  If I don’t have the meds, my eyes would turn green, and I would turn into, The Incredible Parky Brawler.  Minus the muscles, and being able to toss semi trucks around.  Let’s just say, I would not be myself, at all.

Now to my point of this post, which is financial relief for your particular medication.  Many of you may already know this, but I just found out about this from a teller at a bank.  We started of with small talk, business, then family, and disabilities. She said her dad had a heart condition, but could not afford his meds for it, and needed them to help him function.  Well, a nurse told her to call the manufacturer of the meds he needed, and tell them of his situation, and they be able to help.  They did, and praise God, they helped him out. 

Now what’s funny is, I was about to be in the same boat as him, except with Parky as my enemy.  I could not get home fast enough, to tell my wife that there may be a way to get my meds without stressing. I looked up Requip XL and boom, it was on their list of drugs that qualify for assistance.  I filled out the application, and within a few weeks I was approved.  All this from a little birdy.  She has know idea how she blessed me.

So here is the link, http://www.bridgestoaccess.com/.  I hope you can use it for your battle with xyz.  There may be more programs out there, or you know about this one already, if so great.  There are requirements to be met, but if you or someone you know fits it, be blessed by it.  I hope this was helpful.  Excuse my grammar, it’s a work in progress, and it’s almost 2:30 in the a.m.

License And Registration Please Part 2

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Product ImageAs many of you know, I use a mobility scooter to get around.  Now it has been a blessing to have, a huge blessing indeed, but I have also had a few incidents with my ride.  You can read it all in, License And Registration Please!!!. That being said, I figure that it wasn’t all my fault, some blame must be put on the scooter.  How, you ask?  For starters, it was a little small for me, it had 3 wheels, and the thing needed some headlights, and blinkers, and bumpers.  Do you see what I mean now? Worst of all was that tiny little basket up front, why bother?  That is a bitter subject.

So how did I resolve this dilema?  I upgraded to a ride more my style, a better fit, a cruiser with flare.  Product Image That’s right folks, I have a four wheeler.  It has all the bells and whistle’s that a man needs, minus the bumper, headlights, and blinkers.  I’m just gonna put those on order.  Sitting on it just gives me a boost of confidence.  I can do no wrong now, right?

This is a bit embarrassing, but hey, I can laugh now.  Since the horsepower has been increased, my families ankles are a bit scuffed up.  Following a little to close behind.  I went to a field trip with my kids for school, and it was in a theater.  Funny thing was, I rode over some speed bumps, I think.  Maybe those 2 boys were screaming for joy, and not pain?  Note to self, there are no speed bumps in a theater.  At least the field trip was cool, and educational.  What else have I done since acquiring my new ride?  Yes, while shopping with my wife at Lowes, I knocked over a prop, but that wasn’t my fault either.  They should have made prop smaller.  This is the craziest one, while driving from my van to the store, this newspaper stand comes out of nowhere and hooks on to my wheels, and starts falling down.  Had it not been for my quick thinking, and my anti-lock brakes, it might have gotten ugly.

It has been quite an adventure, but it’s not all my fault, I’m still waiting on my parts that I ordered.  I guess I”ll take a small part of the blame, not!!!  Parky Brawler

Special Affects…

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Some days my Parky can give me a run for my money, and today was one of those days.  Never in a million years, would I ever had imagined that I would be battling a Neurological disease, starting at age 36.  The crazy thing is, I think that there are some things physically that I can still do, but in reality, I struggle.  Having the simple luxuries of life, slowly being taken away from you, at times can be difficult to deal with.  It not only affects you, but those around you as well.

This is not a pity party, by any means.  The fact of the matter is, I’m noticing how Parky is slowly trying to take over my body.  This disease has it’s own agenda, and can be deceiving at times.  In my mind I think not to much has changed physically, but all the signs of progression are there.  Tremors, rigid muscles, slow movement (bradykinesia), swinging my left arm when walking, and other symptoms are creeping up on me.  I’m fighting him every day, from sun up to sun down.  My wife always tells me not to give up, and battle this beast with all I have.  I know it’s difficult for me to watch my family take care of me at times, but I know they do it out of love.  I am thankful for them, because they motivate me to push myself, grind it out, and be positive.

Then there are days that I feel like a burden, or in the way.  I know that I’m not, but I would be lying if I said that I don’t feel like I am some days.  It gets to me when I can’t cut my food at times, or when I am walking in slow motion, and everybody is waiting on me, or not being able to stop my tremors when they decide to show up.  It’s almost like you’re a puppet on string, and Parky is the puppet master, and he has total control of your body.  That is a hard pill to swallow.

I just felt I needed to vent about this unforgiving disease.  I know that everything happens for a reason, even in this, my life with P.D.  It is not a death sentence, but it is a progressive disease that can affect you, and bring you down if you just give up.  I refuse to give up, but there are days when I’m tired, and just need rest.  The worst days are when Parky gets me emotionally, I just start crying it seems, for no reason, or I get stressed immediately.  My wife is always there to calm me down.

Sorry for carrying on, but I needed to get this off my chest.  Blogging is a great tool, and so relieving for me.  The fight will go on, but for today, it affected me more than usual.  Thanks for reading.

She's Not My Mom, Seriously?

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Reblogged from Parky Brawler-Fighting Parkinson's and Pain:

We all know that Mother's Day is coming up, and coming up quick. This is one of my favorite days, simply because I enjoy surprising, and pampering my wife. Why, you ask? Simply put, she's the mother of my children. Now, my mom and mother-in-law are special too, without a doubt. But I mentioned my wife because I hear husbands say this about their wives, "she's not my mom." Wow, are you serious?

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I'm posting this again, because it bothers me to hear someone say this. Happy Mother's Day!!!!